Undoing Disease

This is a hard post to write. Not because the subject is difficult, but because celiac disease is literally attacking my brain right now. Microscopic amounts of gluten have slipped into my system twice (I think) in the past two weeks, and my brain is having a hard time processing words. It’s having an even harder time spitting them out in a coherent manner.

Contrary to popular belief, gluten doesn’t send all celiacs sprinting to the bathroom. For many of us, this disease hits us in every part of our body.

Celiac Disease Symptoms

Celiac Disease Symptoms – Courtesy of Gluten Dude

For me, the scariest part of this disease is the effect on my brain. Sometimes I wonder what kind of damage is actually being done. When I can’t concentrate on the book I’m reading, I picture little green men hammering away at my frontal lobe. When I can’t process thoughts quickly enough to have an intelligent conversation, I picture my brain melting into a soupy mess.

At times like this, there isn’t much I can do except rest and wait for my body to heal. As I wait for the healing to come, I pray for a cure. I hope for a day when I can be completely healed. I dream of a day I can walk into a restaurant and order whatever I want.

And as I wait, I support those who advocate for people with celiac disease. People like Gluten Dude, Celiac and the Beast, and Jennifer Esposito. Dietitians like Rachel Begun, Debra Riedesel, and Tricia Thompson. Doctors like Alessio Fasano and the team at the University of Chicago Celiac Disease Center.

And now after typing all these words, my brain is begging for me to stop and rest. It’s time to give in. There’s not much else I can do today.

But rest.

And wait.

And hope that one day, this disease will be undone.


Dove award-winning singer, Michael Boggs, is asking “What Would Jesus Undo?” And for a limited time you can download his highly anticipated single, What Would Jesus Undo, for FREE. Download the song, watch the music video and share with your friends at WWJU.me.

“If we’re supposed to love,
I wonder why we judge
when grace has graced us too.
When it comes down to me and you,
What would Jesus undo?”

And join us in asking, what would Jesus have us Undo?

  • Robin March 25, 2014 at 7:26 am

    Thanks for sharing, especially when you’re feeling so bad. Just the other day my 9 year old said, “I wish there was a pill I could take before I eat, like people who feel yucky when they drink milk.” I usually cringe when I hear ads for magic weight loss pills or other scams, but I do wish there was a way to prevent the effects of being glutened.

    • InspiredRD March 25, 2014 at 8:22 am

      Oh Robin, me too. So much.

  • Ken Scheer March 25, 2014 at 10:29 am

    Glad you shared, I’m about to write something too. I’ve been sick again for about 6 weeks and it’s so frustrating. Unless I eat bland foods I get sick. I wish I could trade in my system.

  • Gluten Dude March 25, 2014 at 10:50 am

    Normally, I’d give the old pep talk, but after the few weeks I’ve had, not much pep in me. Hang in there. The sun will come out tomorrow…

  • kumquatblog March 25, 2014 at 11:08 am

    ugh. i’m sorry… rest and be well!

  • momadvice March 25, 2014 at 11:53 am

    I’m so, so sorry you are feeling bad! Thinking of you!! xo

  • Jen March 25, 2014 at 12:22 pm

    I empathize with the brain fog as an extremely frustrating and scary symptom. I don’t have celiac but the brain fog that comes with fibromyalgia is the same. Makes my life working in an office utterly miserable at times. I feel for you Lys. Hope the little green hammering men take a vacation soon!!

  • Angelique March 25, 2014 at 5:47 pm

    oh gosh Alysa, prayers for your healing! I’m so sorry you feel awful!

  • Stephanie March 25, 2014 at 11:25 pm

    hope you feel better soon!