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Celiac Disease

Seasick eyes, racing heart, can’t lose?

Today I took my first run in what feels like forever.  In fact, I haven’t done any kind of exercise in a couple months. Let me tell you why. Over the past year and a half, my health has been like a roller coaster.  When I was down, I laid low and tried to rest as much as possible.  When I was up, I would go to the gym and…

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This week I will start with joy in my heart

I left you last week with a cry of frustration over my disease.  While I think it was a good thing to write in the moment to let others know what celiac disease is really like, I also know it can be poison to let these frustrations take over. I spent Friday in bed with a migraine and bouts of nausea.  Saturday I started feeling better but still felt like…

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What celiac disease is really like

I’m mad. And sad. And frustrated. And ticked off. Mad at myself. Mad at this disease. Mad at those who call my disease “trendy”. Two weeks ago, I was “glutened” in a restaurant.  I went through all the right steps, asked all the right questions, and still got sick.  Halfway through my meal, I felt the tingling in my brain telling me gluten had entered my system.  Crap. I decided…

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Redefining “Fine”

People ask about my health a lot.  It makes sense, I write about it on a regular basis, stand out in social gatherings because of what I’m eating (or more likely not eating), and in this season of my life experience more bad days than good. As important as I believe it is to raise awareness about celiac disease, there comes a point where I just don’t want to talk…

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It’s not easy being green – Week 2 of the Whole Foods September Challenge

Since my update last week, I am happy to report that I’ve been feeling much better.  Going from whole foods only to whole foods + low FODMAP has been challenging (and a bit boring), but it seems to be working.  My typical meals look something like this. Protein with fruit and veggies from the green list.  I’ve also been eating a little peanut butter here and there to make sure…

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Thankful Thursday: Week 36 – I’m not thankful for celiac disease, but…

Oh boy.  Celiac Awareness Day falls on a Thankful Thursday.  Hmm…. For the record, I am NOT thankful I have celiac disease, no matter what I said in the beginning. Frankly, celiac disease sucks.  It’s way harder than I thought it would be. But this isn’t Thankless Thursday, this is Thankful Thursday.  So, here’s what I’m thankful for when it comes to celiac disease: -The way my dietitian eyes have…

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Joy in Black and White

On a small boat, in the middle of Lake Zeway in Ethiopia, my friend Daniel caught me in a moment of joy. I had no idea he had taken this photo until well after we were home.  It’s quickly become one of my favorites and one that I look at when I’m having a bad day like today. Since posting about our success in week one of the whole foods…

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